Celiac Disease and Me

In 2002, I was diagnosed with celiac disease after having pretty severe symptoms for about ten years. Looking back, I believe I had celiac disease most of my life. I had occasional digestive issues during my teen years that became more frequent into my twenties. People would often tell me I looked pale and ask if I was feeling ok. During my thirties, I began to have anemia and was told by my doctor “women often get anemia, don’t worry about it.” The doctor had to keep increasing my iron supplementation to treat the anemia over the next few years. Then I began to experience more severe digestive issues. Since I was going through a divorce, my doctor told me it was probably just stress. When I began to lose weight rapidly in 2002, I went to a specialist and said, “Please find out what is wrong with me!” I had a blood test and an endoscopy that confirmed celiac disease. I was told the only treatment for it was to completely avoid eating foods containing gluten. So I spent the next year or so reading labels and searching the internet, trying to figure out what I could and could not eat.

Girl with tummy ache

Today I still struggle with some of the long-term effects of being undiagnosed for so long. I have periodic bouts of connective tissue inflammation and fatigue, along with continuing episodes of colitis. Taking extra vitamin supplements and avoiding dairy products has helped some with these symptoms. I continue to look for ways to treat my symptoms with diet. My hope is that by learning more about cooking with gluten-free foods, like sorghum, I will be able to stay healthy and active for years to come.

I became interested in sorghum after learning that corn and rice, the traditional gluten-free grains, aren’t really very nutritious. They tend to be higher in starches and sugars that encourage inflammation. A friend of mine gave me a gluten-free cookbook by Carol Fenster containing many recipes using sorghum and I decided to really explore cooking with it.

So, that’s why I’m here. Do you have on-going symptoms, even after following a gluten-free diet? I would love to hear your story.

Milo graphic

Milo says….

Maizy had a tummy ache today and was really GROUCHY, but I licked her nose and she laughed and gave me a COOKIE. I help her a lot that way.

 

 

12 thoughts on “Celiac Disease and Me

  1. I’ve heard stories like yours over and over again. Seems like the medical community would finally wake up to the reality that what we put in our bodies can be causing problems. What’s good for one isn’t necessarily good for another. Thanks for sharing your story, I’ll bet a lot of people have similar stories to tell.

  2. Thanks for stopping by my blog! I am enjoying looking around yours as well! Though my blog is focused on low-glycemic foods, almost everything I make is gluten free as well, because that just happens to be what is low-glycemic. 🙂 Sounds like the flours I use in some of my recipes might not work well for you (almond and coconut), but I have a lot of other flour-free recipes that you might enjoy. I have a lot of gluten free friends, and a couple friends with Celiac disease, so I am so happy to be able to cook yummy food for them!

  3. Thank you for liking my last post! I made the Banana Breakfast bars last night and they are so ridiculously yummy! I’ll be poking around your blog a lot! My brother has celiac disease and I’m always looking for good recipes for him.

  4. Hi there! Like you, I’ve suffered from digestive issues since young. Never found till I was 19 that I was wheat & dairy intolerant but I don’t have celiac disease. I was later diagnosed with endometriosis which exacerbated my digestive issues. Over years, I’ve removed most commercially produced wheat products. I stick to rice based products so a South Indian diet really helps. But i occasionally have wheat products. I’m not sure if this may help you but Bragg’s Apple Cider Vinegar changed my life. Yoghurt helped too. Hope you’re better now. 🙂

    • Thanks for sharing with us! I’m much better since I quit eating dairy – so NO yogurt! =( I have tried Bragg’s and didn’t get much result from it, but that was before I quit the dairy.

  5. I love your blog! Milo too! I have Celiac and didn’t really start cooking until my diagnosis. But sorghum is one of my favorite flours! I’m allergic to tapioca, so I can’t have the normal gluten free all purpose flours. So, I don’t know too much about sorghum, minus my small experimentations. I look forward to following your adventures with sorghum! P.S: I’m allergic to milk, and a lot of celiacs are lactose-intolerant for at least the first year. You’re in good company for the GF/DF community 🙂

  6. I have not been diagnosed as Celiac. Years ago I was told that I had chronic colitis. I’m sure I’ve had it all my life, whatever it is. I never thought it was a food allergy, because I was always sick. How could I be allergic to all food? I didn’t think about the one food we eat everyday.

    When I read the book about wheat sensitivity by Dr. Davis, I went five days without eating wheat. Every symptom disappeared! I think I have gluten sensitivity, but not Celiac. I appreciate your blog. Blessings to you,

  7. Maizy, such a great blog. I have had symptoms (digestive, skin & canker sores) since my late teens and started to get really sick in my mid-twenties. At one point I thought maybe I needed MORE fiber! LOL. My blood test came back negative in 2005. At that time one maternal Aunt was diagnosed with full blown Celiac (also anemic from internal bleeding). By 2011, my brother was diagnosed with wheat intolerance and another maternal Aunt with Celiac. So after 3 years of a GF diet (and symptom free), I took the DNA test. HLA-DQ8 (which means I also have DQ3 – wheat intolerance). I don’t have celiac but due to the wheat intolerance and celiac gene, I stick to a GF diet. I too have random bouts of inflammation and dairy seems to aggravate it. I am always looking for GF/DF recipes. Your Sorghum desserts always look fantastic. Maybe you should think about extending your 52 weeks. 🙂 Happy blogging!

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