In 2002, I was diagnosed with celiac disease after having pretty severe symptoms for about ten years. Looking back, I believe I had celiac disease most of my life. I had occasional digestive issues during my teen years that became more frequent into my twenties. People would often tell me I looked pale and ask if I was feeling ok. During my thirties, I began to have anemia and was told by my doctor “women often get anemia, don’t worry about it.” The doctor had to keep increasing my iron supplementation to treat the anemia over the next few years. Then I began to experience more severe digestive issues. Since I was going through a divorce, my doctor told me it was probably just stress. When I began to lose weight rapidly in 2002, I went to a specialist and said, “Please find out what is wrong with me!” I had a blood test and an endoscopy that confirmed celiac disease. I was told the only treatment for it was to completely avoid eating foods containing gluten. So I spent the next year or so reading labels and searching the internet, trying to figure out what I could and could not eat.
Today I still struggle with some of the long-term effects of being undiagnosed for so long. I have periodic bouts of connective tissue inflammation and fatigue, along with continuing episodes of colitis. Taking extra vitamin supplements and avoiding dairy products has helped some with these symptoms. I continue to look for ways to treat my symptoms with diet. My hope is that by learning more about cooking with gluten-free foods, like sorghum, I will be able to stay healthy and active for years to come.
I became interested in sorghum after learning that corn and rice, the traditional gluten-free grains, aren’t really very nutritious. They tend to be higher in starches and sugars that encourage inflammation. A friend of mine gave me a gluten-free cookbook by Carol Fenster containing many recipes using sorghum and I decided to really explore cooking with it.
So, that’s why I’m here. Do you have on-going symptoms, even after following a gluten-free diet? I would love to hear your story.
Maizy had a tummy ache today and was really GROUCHY, but I licked her nose and she laughed and gave me a COOKIE. I help her a lot that way.